Susana’s tumors are back…and worse than before

Our hearts ache without limit right now.  Words fail me.  Her tumors are back.  It’s very very bad.  She has them everywhere, including one on her brain.  We’re losing our little girl.  Without any further treatment, she has about a few months to live.  Her body will soon begin deteriorating and will cause a lot of pain.  The treatment options that we are presented with are few and are experimental all throughout.

Our conversation with the oncologist today had phrases like “quality of life” and “pain medication” interspersed throughout.  This is really happening.  I cannot even think straight.

Yet at the same time, the grace of God is mysteriously with us.  We have wept like crazy, but at the same time know that we can let her go be with Jesus.  He is the prize for which we chase hard after every day…and it seems like Susana will be the one who gets there first.  This will only make our longing for the Kingdom to come all the more.

Please pray for us as we have some important decisions that need to be made very soon.  This is the hardest thing that we have ever been faced with.  We need the Lord’s peace, comfort, strength, grace, and wisdom.  He is still who we cling to.  He is still who we love.  I don’t understand why, but I know that He is good and that He has reason for everything He does.  I also know that death is not the victor to those who hope in Christ.  It is just the beginning, the entry point into eternal glory.  And it seems like the Lord is calling Susana through that entry point.  We will rejoice with her, and we will weep.  That’s the way it will be.  Right now though, I’m just weeping.

133 thoughts on “Susana’s tumors are back…and worse than before

  1. Cody and Maria,

    Our hearts are so heavily burdened with this news. I can not find the words to express our feelings…..

    You and your precious daughter have been a mighty testimony for God’s provision of peace in times like these. I read Job last week in my quiet time…I hope these words help in these times of anguish…..God is God….we may not understand his entire purpose for this time this side of His Glory….

    Job 26:

    He spreads out the northern skies over empty space;
    he suspends the earth over nothing.
    8 He wraps up the waters in his clouds,
    yet the clouds do not burst under their weight.
    9 He covers the face of the full moon,
    spreading his clouds over it.
    10 He marks out the horizon on the face of the waters
    for a boundary between light and darkness.
    11 The pillars of the heavens quake,
    aghast at his rebuke.
    12 By his power he churned up the sea;
    by his wisdom he cut Rahab to pieces.
    13 By his breath the skies became fair;
    his hand pierced the gliding serpent.
    14 And these are but the outer fringe of his works;
    how faint the whisper we hear of him!
    Who then can understand the thunder of his power?”

  2. May the Lord bless you with peace beyond understanding. You will be in my prayers. What a blessing that Susana has a family like you to support her and gently guide her into the Lord’s ever loving arms. May God bless every moment you have with her and may her pain be lessened by the Blood of Christ.

  3. Our prayers have been with you all since we first heard of Susana’s illness. Our oldest grandson was hit by a car while riding his bicycle and suffered a sever head trauma. We didn’t know if he would live, die or live but with severe disabilities. It was your strength and faith in dealing with Susana’s illness that helped sustain us through that trial. We believe strongly that God is good and if our Ivan would be taken from us or have to live with disabilities it was for God’s purpose. We were lucky and it truly it is a miracle that he is 100% fine – in body and mind. We will continue to pray for Susana and for your whole family. God will keep you in his heart and mind and give you peace – the love that passes all understand.

  4. My daughter is 4 and I told her and my son, who is 5 this morning that a little girl about their age was sick and needed cheering up. I told them it would be nice to draw her a picture. My daughter said she would draw a picture of herself and Susana.

  5. HI Cody and Maria,
    I can not begin to imagine the sadness you are feeling right now. All of you and of course, dear, sweet Susana are in my thoughts and prayers. xxoo
    Janis, Mark, Liam and Emma

  6. Cody, my heart aches for your family. This post has been on my mind and heart since I read it. Our prayers are definately with you. I wish there was more that I could do…it there is please let me know. God bless you and your family.


  7. We love you all so much and feel your pain. Please have faith that our Father is doing the best thing for our Little Susanna. We are all reaching for his loving arms, some of us just get there sooner, but we all will be there, together, one fine day.

    Maria, tienes una casa aqui y una hermana quien te quiere. Por favor visita me, mi casa es tu casa. Me caiste tan bien cuando nos conosimos, nos entendimos.. :o) te estoy mandando muchos abrazos y besitos a ti y a tu familia. Quisera conoserte mas y ser tu hermanita de CT.

    Cody, I see you as my brother and you and your beuatiful family are welcome to come and stay with us anytime, we would so look forward to your visit.

    Please, please let us know if there is anything you all need, anything at all to help you through this troubled time.

    I have been praying for you and your family since I met you..and will continue, you are very, very special people to us!!! You are all so good and giving of yourselves, please let us give to you in any way possible!!

    You have your home here, whenever you want it!

    All my Love, Dannes, Erika, Alec & Shane We love you!!!

  8. We are praying in Durango Colorado for you and your sweet family. My heart aches for you and I am in awe of how you continue to have your eyes set on Jesus and his amazing plan for you and your family. Your baby girl is… right now held under his wing, protected by his spirit and He loves her more than we ever could. I’ll pray peace comfort and a supernatural grace to go before you and your family during this incredibly difficult time. God bless your sweet family. lv, jen

  9. dear family ,my thoughts and prayers are with you as you enter into the last face, but your faith i know will see you through, and what a joy it will be , when this beloved susana wil be with out pain ,and suffering anymore , and you have all the more reason to look forward to go to the kingdom, , jesus yes halleluja , and then your sweet susana , but jesus can still perform miracles even now , he is not finished yet , lets trust him that he might do something new halleluja what a saviour , healer and comforter ,
    have peace in him , it will only be a little while , as i am writing this and read all your email i am just weeping , but jesus is in control until the end , in his love heidi

  10. My heart breaks. I am so sorry. We lift you and your family up in prayers. God’s ways are sometimes so painful, confusing, and seemingly unfair.
    I am coming Stateside on Wed. Is there anything I can bring to the States for you guys that you have in Haiti?

  11. I am deeply touched by the prognosis..However, I know that Susanna has Jesus, God;s unfailing love. My prayers will be with you Susanna and you beautiful family. Next Sunday I am running a half marathon on behalf of the American Cancer Society, and I have raised $950 for fighting cancer. I will write your name in my shirt and i will accomplish those miles in your honor too. Much love
    Suely S McCluskey,RN

  12. Weeping with you in johnstown PA. There are no words. I am so, so sorry. Your family is in my prayers.
    Rachel H.

  13. Hi Cody, This is Pastor Frank’s daughter we were in Missions last year together in Camp Coq. I just read this from Pastor Phillips facebook. The Alfreide Family has not stop praying I know a miracle is going to happen in Jesus Mighty name, for He is the our greatest physician. You have to keep believing that God can do it and rebuke the spirit of sickness from your daughters body. Please read Psalm 41 aloud with her every night cause God’s word is powerful. We as Christians in the Body of Christ and we do not have an expiration date and I rebuke whatever these doctors are saying about your daughter. God sees you’re heart and how much you care for the poor, that will not go in vain. Please have a positive outlook on your daughter, we will stand firm in prayer, We know that this test will be a testimony in your ministry, the enemy is already defeated in Jesus Name.

  14. Cody, Maria, and Susana, we will suffer with you through this unbearable time!
    “I know whom I have believed, and am convinced that he is able to guard what (you) have entrusted to Him for that day” Whatever you need, just let us know!

  15. Father God, please comfort this precious family. Give Susana comfort physically. Give her peace. Touch her body. Lord, I don’t even know how to pray but Jesus You do. You intercede when we are wordless. I pray peace, comfort, wisdom, provision, and miracles. Please God come quickly. We wait and trust You. We love You. Amen

  16. We’re asking God for a miracle for sweet Susana…our thoughts and prayers are with you all daily. Love you guys! Sue & Merrill

    “In the same way, the Spirit helps us in our weakness. We do not know what we ought to pray for, but the Spirit himself intercedes for us with groans that words cannot express. And he who searches our hearts knows the mind of the spirit, because the Spirit interceds for the saints in accordance with God’s will.”
    Romans 8:26-27

  17. Oh my heart aches with and for you all. I’m new to your journey. I will commit this all to prayer.

    My was a patient at St. Jude, we know where you are at, and relapse, gosh…the hardest words any parent could bear.

    Keep holding on Jesus, and we will keep lifting your precious daughter up! I’m praying for you too mom.


  18. Cody and Maria;
    We are praying for Susana as well as you two and your entire family for strength and faith and hope, no matter what the outcome, God IS in control. We have seen cancer disappear when His children pray. Jesus is the GREAT physician and ALL things are possible with Him!!

  19. ” We need the Lord’s peace, comfort, strength, grace, and wisdom. He is still who we cling to. He is still who we love. I don’t understand why, but I know that He is good and that He has reason for everything He does. “….I think upon James 1:5 and praying …I also praise God that He will continue to make the crooked places straight and the rough patches smooth in your lives…

    Lighthouse of Prayer has linked up with Fearless Friday and I came by to surround you and your family in prayer…

  20. Our Sunday School class at Ogletown will not quit praying in fact we will do as James says and pray FERVENTLY! We had been so rejoicing at the good news of the past several weeks and were just floored when we read your note. But we haven’t given up, knowing that while we don’t know what God will do, we know there is nothing He can’t do. Covering you in prayer. Wayne Shufelt.

  21. Where there’s life, there’s hope!
    Try grated apricot kernels if you can get them.
    Contain cyanide, but seem to stop tumour growth.
    Still praying…

  22. Dear Sweet Cody and Maria,
    Mike and I are continuing to hold you all up in our prayers.You have shown such faith as you have walked this most difficult road.Our hearts break for all of you, but yet we rejoice in the fact that you are not walking this road alone, you have the Lord walking before you and you know Him and little Susanna knows Jesus.You are a precious family and you have so many praying for you! God is your strong tower and ever present help in time of need.We love all of you and pray God’s grace and peace on each of you every minute of every day.
    RossAnn Mckee

  23. Hi Cody,
    Please kiss your sweet little baby for us, my Madison said a special prayer for her today, it was so sweet to listen to my 5 year old tell Jesus how much she loved Susanna and asked God’s healing for her body. You touched me this morning with your faith in Jesus and your deep love and trust for him in walking this painful road. Tell little Susanna she has a little friend who loves her, God bless you and Maria, we are holding you high to our King, we still believe in miracles, we just sit and wait for our Lords answer. We love you all.

  24. I am so sorry to hear this news.
    I recently lost my husband to brain cancer – and while it is nothing compared to the loss of a child, I completely understand the path you will soon follow.
    Peace to you. God is perfect, as you know, even though we don’t always understand his decisions.
    Thinking of you all.

  25. Dear Cody and Maria,
    There just are no words for moments like these. My heart broke for you when I heard about this via a prayer chain – likewise am taking it to my prayer meeting which consists of Christians throughout Europe. The world continues to lift you up in these dark days. Praying God’s wisdom, peace, and strength as you walk this out one day at a time.
    (Robin and Dan’s sister)

  26. All of you have been on my mined, I seen a pray on (PN) I prayed for your family.. May god be with you and give you peace in your hearts. This has touched everyone hearts. Suzanne is so lucky to have a family that loves her so much. God is good…god bless you…Suzanne you will stay In my prayers 

  27. You all are going through a lot of hurt and sadness. I pray for your strength, faith
    in God’s love and endurance in this path of life. Remember–We all are God’s
    children. Our children are his. It’s hard to totally except during your hard

    Love and prayers for your march and enduring love of God.

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