Please pray for Susana and our family. We have had a rough couple of days. Susana has been doing absolutely fantastic up until about a week ago. She began losing her appetite and getting very fatigued. Then, in the last few days she has been complaining of specific leg pain. She also has had a fever in which we had to take her to the ER a few nights ago. They simply gave her an antibiotic through her line and sent us home to monitor it. Her blood counts are still great.
But, we are freaking out! Both Maria and I are emotional wrecks right now. This feels too much like deja vu. It just feels like this is exactly what was happening back in April when we first learned of her cancer. So, we need prayer BIG TIME!!!
Susana has still had a fever for the past several days, but she is doing ok, meaning that she is happy and just pushing through, aside from the fact that we need to carry her wherever because it hurts her leg too much to walk.
The ONLY “consolation that we can gather right now is the fact that 3 other children at the clinic have also had to go to the ER this week because of fever and such. So, maybe this is just a virus that she picked up from the clinic. Maybe she has something like the flu.
Last night, she started stating that her throat also hurt when she swallowed, which both Maria and I looked at as a good thing because that sounds more like flu symptoms than things much worse. This morning, I myself have a sore throat and am not feeling that great. So…we are p-r-a-y-i-n-g that all of this is just a virus, but we cannot help to think the worst. I mean, cancer has entered our lives and it doesn’t just go away. Every time something out of the ordinary occurs with Susana, we are naturally going to think the worst…because we have seen the worst. Its hard to think now that a tummy ache is simply because she ate too much. Or that a pain in her leg is just because she got hurt. Or a loss of appetite is just because she’s just not that hungry. No, these things now have much weightier associations attached to them…whether we like it or not.
Susana is going to have her MIBG scan this morning, so that is a really good thing because this scan will show us if there is any tumor activity. This is the scan that she got just before the stem cell transplant that showed “no evidence of disease” last time. This was the scan that caused us to greatly rejoice at the news that there did not appear to be any trace of cancer in her body. And now we are about to get this scan in an hour…and our hearts are pounding and we are nervous wrecks. This scan will tell us whether these symptoms are indeed just a virus…or that our worst nightmare has just returned.
Please pray for us. We are in great need for a miracle. We are in great need of the peace of God to sustain us and get us through.