Well, not really an update on Susana’s condition. She pretty much remains the same and hasn’t had any further tests done. One positive report back was that the doctors did not see any results that would show concern about the tumors putting pressure on her spine that may cause paralysis. So, we thank God for any good news. She is moving her legs without any problem as of now, so things are looking good with regards to that. They are waiting for some of the final bone marrow analysis to get the final diagnosis stamped as Neuroblastoma, which they are pretty much positive that it is. Once that diagnosis is confirmed, they will begin treatment. They are hoping to get the reports back today so that treatment can begin tomorrow.
We have had tons of people emailing us and offerings suggestions for hospitals that give the best treatment for children with cancer, and even children with neuroblastoma. Trust me, we too have done our research like crazy. We have talked with some of the top hospitals out there, Philadelphia, St Judes, etc. Here is the conclusion that we have come to through our many conversations with different doctors. The initial treatment for this cancer will be the same no matter where we go. As long as the hospital is part of the Children’s Oncology Group, the protocol will be exactly the same, whether we are at sloan kettering, St Jude, or here at Miami Children’s Hospital. The doctors that we spoke with encouraged us to go to a place where we have the most support and a place that we prefer. Her treatment will not differ wherever we go. It is only after the initial treatment that will determine if she needs to be moved to a specialty hospital for more advanced treatment. But that will not take place anytime soon.
So, our decision for now is to remain here at Miami Children’s Hospital, providing that we do not get accepted at St. Jude’s, which isn’t looking good. And that is fine since we trust that the Lord will open the door if He wanted us there. Since that door has not opened, we completely trust that it is not in His will for us to be there. So, here in Miami and Ft Lauderdale, we have a great network of support. Maria has family here in Miami and we both have friends and churches in the Ft Lauderdale area that are not far from here. We have been given an apartment temporarily through the hospital, but we would probably need a place to stay that is better for long-term. We also will need a vehicle as well and we already have a church in Ft Lauderdale trying to get us one. Like I said, we are blessed to have some great church family that can be a great support for us.
We are committed one hundred percent to making sure that Susana gets the best treatment. So, if the initail treatment here does not bring about any results, we will certainly go wherever she can get further advanced treatment. But right now, the initial treatment is the same anywhere we would go. So, we will remain here.
Thank you all so much for your prayers and your desire for Susana to get the best treatment. Know that we have bathed everything we are doing in prayer and are fully confident that the Lord is directing our every step. The care here in Miami Children’s Hospital has been great so far. The staff are extremely knowledgable and they are very kind. Susana has been given more gifts and goodies than we have room for. We believe that this is the best place for her to remain for now as is the best for our family. We have good friends who have offered support in so many ways, including helping Isabela remain homeschooled. What a blessing!
We are about to embark on a long and difficult road. May the Lord Jesus be our Prince of Peace and God of all comfort to all of us, especially our little Susana.
From here on in, we will only post updates on our blog at www.howcantheyhear.org rather than sending this group email all the time. So, please bookmark our website so that you can all stay informed and remain in prayer. We love getting emails and blog comments from all of you, so please don’t stop. It is so often the very words that we need to hear at exactly the right time. We thank the Lord for all of you and are so blessed to have such a strong support group.
God is on the throne…and He is good.