Well, Susana was discharged last night from the hospital around 6PM. It was both exciting and scary to be leaving. Obviously, we are happy to be out of the hospital and to start trying to get used to the new path that the Lord has placed us on. But we were also a little scared to leave since Susana is still sick. Its not like taking a child home from the hospital who is totally healed. We know that our little girl still has some major issues going on right now. And now, we are the ones that have to address all of those needs, administer shots and medication every day, monitor her eating and drinking, checking temperature regularly, keeping her safe and as comfortable as possible, and just being the ones responsible for her well being. So…yeah….it is a little scary. But we know that the Lord’s grace is sufficient each day. And so we continue to find our hope and trust in Him alone. He is still good. We have a few doctor appointments next week to check her counts. Lord willing, she will be ready for her second round of chemo in 3 weeks.
Susana was crying upon discharge and saying that she did not want to leave, but as soon as we got back to our hotel, she sat up on the bed, ate a few small bites of chicken, some bites of mac and cheese, and a small chocolate donut. She then wanted to play with all of her new toys. She was very happy with all of the things that so many people have sent her. My little girl is so selfless and giving. She opened up a bag of princess stickers, which she was very happy with. The next thing she does is start giving a few stickers to each of us so that we could all have some. I was so touched. She is such a gem. So, I proudly displayed my cinderella sticker on my shirt for everyone to see. She was feeling so good that she said she wanted to come with us to the store so that we could buy some ice cream cones. So, we all went out last night around 9PM in search of a Wal-Mart. She ended up getting very tired while we were driving around. Our search ended without landing us any ice cream cones, but it sure was nice just to see her sitting up in the car seat and looking around.
We have Maria’s friend, Jessica, who is visiting with us for a few days. She is from DE. She came down with her 4 year old son. It is good to have close friends standing with us.
We are staying at this hotel suite for a week. During this time, we will try to find an apartment nearby to rent. We realize that since we will be making routine trips to the hospital each week, that it would probably be best to try and live close to the hospital. So, please pray that we can find a place to rent.
Not in a million years would I have ever thought that we would be living in Miami…but here we are… – Cody